Future Reflections March/April/May 1984, Vol. 3 No. 2
PARENTS WANT INFORMATION
The following letter comes from the Illinois parents of a blind toddler.
Bilateral Third Nerve Palsy Information Wanted
Our child, Matthew, age two, has a rare eye condition that shows very limited eye movements. Also his pupils are of different size and do not react to light. One eye was closed at birth and at 14 months he had an eye "sling" surgery done because he surprised everyone by pushing that eye open. Dr. Ellis, I.U. Med. Center, Indianapolis, IN. did that surgery and also did another surgery to adjust his eyes to look straight ahead. His vision seems to be good at close distances. For example, as we were walking up the stairs he dropped his gum and picked it up and stuck it back in his mouth.
I would be interested in any information anyone has on these symptoms. Has anyone come up with a good way to test vision at home so you will have some suggestions to give the doctors?
R R #2 Box 272
Bloomington IL 61701
Pennsylvania parents request information as follows:
Information wanted concerning Bilateral Optic Nerve Hypoplasia. My son was born with this condition. He is now six years old, and is presently under care for growth harmone deficiency. Would like to find other parents whose children were born with Bilateral Optic Nerve Hypoplasia, and its linked condition of growth harmone deficiency. Any reply will be appreciated.
Mrs. Bonnie Fairchild
Abbottstown, PA 17301
FINGER PLAYS AND RHYMES
(From the PAVIC NEWSLETTER, a publication of Parent Advocates for Visually Impaired Children of Colorado.)
Finger plays are a convenient way to promote social interaction with your child. In addition, it is an opportunity to teach your child many important skills which he will need for further learning. The finger plays combine kinesthetic and auditory cues which provide a feeling of movement which is independent of vision. They can be used to entertain your child when you go places where there are strange noises, to make a long ride in a car bearable. You can recite them going down the aisles of supermarkets, whisper them in places where your child must be quiet, waiting in doctors offices and restaurants. Write them down on 3x5 cards so all family members can do them with him, and they are a good way for your child and the babysitter to make friends.
Five fingers on this hand,
Five fingers on that;
A dear little nose,
A mouth like a rose,
Two cheeks that are tiny and fat.
Two eyes . . .
Two ears . . .
And ten little toes.
That's the way (name of baby) grows.
Gently touch each part of your baby's body as it is
The Missouri School for the Blind has asked us to publicize information about their new Outreach Program. Here is what they say:
"The Missouri School for the Blind has initiated an Outreach Program which serves visually impaired and/or blind individuals ages three through twenty years of age whose parents or guardians live in Missouri.
"Outreach is designed as a resource program to assist parents of pre-school blind children in obtaining services from appropriate state agencies and local community services, to serve as the liaison between the Missouri School for the Blind and Local Education Agencies throughout the state on prospective students, to consult with educators of mainstreamed students on such things as methods of teaching the visually handicapped, and to disseminate information on the American Printing House materials center services to local school districts serving visually handicapped students.
"A brochure describing the Outreach program is currently available upon request. The information is also available in braille and on cassette. Please address inquiries to:
Kay Koncen, Outreach Director
Missouri School for the Blind
St. Louis, MO. 63110
Telephone: 314-776-4320, Ext. 62"
CROCHET, KNIT, TAT AND COOK
Horizons for the Blind is offering a variety of new Braille booklets with such titles as: "Knitted Animals," "Learn to Crochet," "Muffin Mania," "Crocheted Critters," etc. The booklets will also soon be available in large print. For more information contact:
Horizons for the Blind
7001 N. Clark Street
Chicago, IL 60626
TALK TO ME: A language Guide For Parents of Blind Children is a new booklet published by the Blind Children's Center of Los Angeles, CA. Linda Kekelis of the center sends us the following information about its availability.
"We hope this booklet will help parents of the blind to enjoy their children while they promote their children's language development. The pamphlet, available free of charge to parents, can be obtained by writing to the Blind Childrens Center, 4120 Marathon Street, P.O. Box 29159, Los Angeles, CA 90029-0159.
"The Center is offering the pamphlet to any interested professional at a cost of $1.00 per copy. For more information contact Nancy ChernusMansfield, Blind Childrens Center at (213)664-2153 or Linda Kekelis, University of California, Berkeley at (415)642-7923."
The Boston Information and Technology Corp. (BIT) has asked that we publicize the availability of a new product for the blind and visually impaired. Here is what they say:
"NEW POCKET-SIZED MACHINE FOR TALKING BOOKS -- B.I.T. Corporation has introduced the BIT Talkman, a Walkman-sized FM stereo cassette recorder adapted for playing both the Library of Congress 4-track, slow speed cassette books and commercial two-track stereo cassettes. The BIT Talkman also features stereo recording from FM radio or external microphone jack; special three-track, mono, slow speed recording; tone indexing recordings; variable speed control; automatic recording level system; one-touch recording; auto-stop mechanism; mechanical pause button; metal/chrome or normal tape selector; and built-in condenser microphone. The unit measures 3V4 by 51/2 by 1 Vi inches, weighs just slightly over one pound, and comes with lightweight stereo headphones, belt-clip, shoulder strap, operating instructions on cassette, and a one-year warranty. List price: $195.00 For more information on how to order a BIT Talkman, please contact:
Boston Information & Technology Corp.
P.O. Box 70, M.I.T. Branch
Cambridge, MA 02139
Distributors' inquiries welcomed."
We have been asked to make the following announcement:
"We just found out our baby is visually impaired. We want to do something to help him -- but what can we do? He's just a baby!"
"We want our child to be active and fit, and to have interests and hobbies like other kids. What kinds of physical activities is my child capable of doing -- and how can he be taught to do these safely?"
"How can my child best be prepared for a career? How can we teach him skills of daily living so that he can grow to be an independent, well-adjusted adult?"
These are some of the questions that will be addressed at Insight In Sight, the Fifth Canadian Interdisciplinary Conference on the Visually Impaired Child to be held in Vancouver, B.C. Canada on October 18, 19 and 20 of this year. Co-sponsored by the Canadian National Institute for the Blind, B.C. Yukon Division and the Visually Impaired Program at B.C. Children's Hospital, the conference will bring together over 25 speakers from all over Canada and the United States. Topics will be of interest to parents of visually impaired children and to professionals such as educators, therapists, physicians, and infant development workers.
Invited speakers include internationally respected ophthalmologist Dr. Creig Hoyt, infant stimulation expert Lois Harrell, and renowned educator Dean Tuttle. Presentations will cover such diverse topics as recent medical advances, computers, electronic travel aids, and self-esteem of the visually impaired.
During most of the conference two or three speakers are presenting concurrently, and care has been taken to ensure that there will always be at least one presentation of particular interest to parents. In addition, on Thursday and Friday afternoons all speakers who have presented talks on that day will be available for a one hour question period. It is hoped that parents will use this opportunity to ask questions and discuss their concerns in a less formal atmosphere.
To encourage parent participation, a special registration fee has been established. The entire three day conference will cost only $60.00 for the parent of a visually impaired child or $100.00 per couple. A daily rate of $25.00 is also available for those who are unable to attend all three days. (Fees for professionals are $135.00 with registration before July 1 and $150.00 after that date).
The conference site is the beautiful Four Seasons Hotel in downtown Vancouver, convenient to major shopping areas and a short bus or car ride to such notable tourist attractions as Vancouver's famous Stanley Park, the Vancouver Aquarium, and the second largest Chinatown in North America. Conference participants may want to spend a few extra days exploring this exciting cosmopolitan city and the lovely surrounding beaches, mountains and rain forests.
For more information, and registration brochures, contact Insight In Sight, CNIB, 350 East 36 Avenue, Vancouver, B.C. V5W1C6. Telephone: 604/321-2311.
(NOTE: Fees quoted are in Canadian dollars).
The following items are reprinted from the Braille Monitor (The monthly magazine of the NFB).
RESOLUTION TO SUPPORT WORKSHOP EMPLOYEES:
Resolution 8301A Support Of Workers At The Raleigh Shop
Whereas, the Raleigh Lions Clinic (hereafter Raleigh shop) has been known for its poor treatment of employees, its very low wages, and its extremely custodial attitude toward blind people; and,
Whereas, as a group, we, the organized blind of this country, have worked steadily to end these practices by assisting in obtaining union representation in workshops in Cincinnati, Houston, Little Rock, and as a matter of policy we intend to continue that practice: Now, therefore,
Be it resolved by the Executive Board of the National Federation of the Blind of North Carolina in meeting assembled this 13th day of August, 1983, in the city of Fayetteville, North Carolina, that this organization express its support of the right to organize by workers in the Raleigh Shop; and,
Be it further resolved that a copy of this resolution be presented at the worker meeting August 18, and that a copy be spread upon the minutes of this meeting.
Byron Sykes, President
National Federation of the Blind
of North Carolina
We have been asked to carry the following announcement:
"A New Braille Hymnbook Now Available. The Evangel Hymnbook published 1983, contains 200 best loved hymns and gospel songs, available in two editions: 1. The Evangel Hymnbook, (words only), 1 vol., cost $5.00. 2. The Evangel Hymnbook (words and piano score), 2 vol., cost $10.00. Treat yourself or a friend with this treasure of sacred music. Table of Contents on cassette tape is available upon request.
"Order from Christian Education forthe Blind, Inc.,
P.O. Box 6399, Fort Worth, Texas 76115; 817-923-0603."
FROM NATIONAL BRAILLE PRESS:
The National Braille Press has just published a book, A Beginner's Guide to Personal Computers for the Blind and Visually Impaired. It includes a review by blind users of six popular personal computers. Price $6.00. To make orders or for further information contact National Braille Press, 88 St. Stephen Street, Boston, Massachusetts 02115; 617-266-6160.
William Porter of Illinois asks that we run the following announcement:
"Prevent serious injuries when working with power tools such as table saws, radial arm saws, jointers, etc., by using Fingersaver Safety Push Sticks. A professionally designed safety aid for use by blind and partially sighted woodworkers. A must for every shop -- a perfect gift. $5.50 for a set of two. Or, write for information to Fingersaver, P.O. Box 5765, Pasadena, Texas 77508. Satisfaction guaranteed or money back."