Future Reflections
Volume 42, Number 4 Fall 2023
A magazine for parents and teachers of blind children published by
the American Action Fund for Blind Children and Adults in partnership
with the National Organization of Parents of Blind Children.
Deborah Kent Stein, Editor
ISSN-0883-3419
Copyright © 2023 American Action Fund for Blind Children and Adults
For more information
about blindness and children contact:
National Organization of Parents of Blind Children
200 East Wells Street at Jernigan Place, Baltimore, MD 21230 • 410-659-9314
https://nfb.org/nopbc • [email protected] • [email protected]
Contents
FEATURE
Thinking about My Dad
by Kevan Worley
GETTING STARTED
Developing Multisensory Skills in Blind Babies
by Amber Bobnar
Get in Your Child's Shoes
by Sarah Kassim
Images Are for Everyone: Building the Foundations for Tactile Literacy
by Chancey Fleet
FAMILY
Sharing Blindness with Family: A Conversation on the Dynamics of Blind Siblings
Moderated by Seyoon Choi
Hosting Amr
by Jennifer Duffell-Hoffman
SCHOOL
Lessons from the Pandemic: Research on the Experiences of Blind Students and Their Families
by Arielle Silverman
Meeting the Challenges: Changing Life for the Better through Congressional Debate
by Mirielle St. Arnaud
Nudges and Possibilities
by Emerie Mitchell-Butler
So, What Are You Studying?
by Rishika Kartik
CAREERS
Closing Loopholes and Opening Doors: Preparing Blind Students to Work in the Field of Cybersecurity
by Laura Bostick and Chuck Gardner
ADVOCACY
A Tool for Self Advocacy in High School
by Erin Jepsen and Abi Jepsen
A Roller Coaster of Emotion: The Highs and Lows of Federal Regulations on Website Accessibility (or the Lack Thereof)
by Kyle Walls
Progress to Make the Web More Usable and Friendly for the Blind
by the NFB Advocacy and Policy Team
PERSPECTIVES
On Medical Interventions and a Full Childhood: How We Decided Not to Treat Our Daughter's Blindness
by Jamie Principato Crane
WHAT’S NEW?
SABER Final Outcomes Report
by Seth Lamkin
Of Watches, Pages, and Healthy Competition
by Lisamaria Martinez
Braille Readers Are Leaders Contest Builds Opportunities
Why Join the NOPBC?
Are you the parent of a blind/low-vision child? Don’t know where to turn? Have you ever wondered what your child will be capable of when he or she grows up? Are you concerned that your child’s future will be limited by blindness or low vision? Do you have questions about how to parent a blind child? We are here for you.
What is the NOPBC?
Founded in 1983, the National Organization of Parents of Blind Children (NOPBC), a proud division of the National Federation of the Blind (NFB), is a membership organization of families, friends, and educators of blind children. We have thousands of members in all fifty states plus Washington, DC, and Puerto Rico.
Who is the NOPBC for?
We have a very inclusive definition of blindness which includes children who have some usable vision. Instead of focusing on what the child can or cannot see, we focus on the child and what she or he wants to be.
NOPBC is for families, educators, and friends of blind children, including those who have some usable vision. We welcome all families of blind children, and many of our children have both blindness and other disabilities.
We help families and blind children themselves maximize the child’s abilities and opportunities; we hold high expectations for all of our children, regardless of any additional disabilities they may have.
Why is the NOPBC a part of the National Federation of the Blind?
As a division of the National Federation of the Blind (NFB), the largest and most influential organization of blind people in the world, the NOPBC is well informed about the societal, legislative, and technological issues that affect blind people. We enjoy the resources, support, and expertise of fifty thousand blind people who can serve as mentors and role models for us and our children. When we as parents join the NOPBC, our children belong to the Federation family.
What is our mission?
The NOPBC:
- creates a climate of opportunity for blind children in home and society.
- provides information and support to parents of blind children.
- facilitates the sharing of experience and concerns among parents of blind children.
- develops and expands resources available to parents and their children.
- helps parents of blind children gain understanding and perspective through partnership and contact with blind adults.
- functions as an integral part of the National Federation of the Blind in its ongoing effort to achieve equality and opportunity for all blind persons.
Most states have an NOPBC affiliate chapter. You can find your state chapter at http://www.nopbc.org. If your state does not have a chapter and you would like to start one, please contact us. We may be able to offer training and other assistance to start a state NOPBC chapter.
Why Join the NOPBC?
We have been where you are, and we want to support you and your blind child. We know that blindness does not define your child's future. We can connect you with other families and blind adults who can serve as positive mentors and role models. They can teach you the attitudes and techniques that will enable your child to become independent and to succeed in life.
The NOPBC offers hope, encouragement, information, and resources for parents, families, and educators of blind children. NOPBC provides:
- emotional support and a network of other families dealing with challenges similar to those you face;
- information, training, and resources to empower you to take an active role in guiding your child’s development and education; and
- information on your child’s rights and on the laws and legislative issues that will enable you and your child to become strong and effective advocates.
We offer a wide variety of programs, activities, and training to families, children, and youth. One of our most exciting activities is our annual conference. Every year since it was established, the NOPBC has conducted an annual conference for parents and teachers of blind children as part of the national convention of the NFB. This conference has grown to include five exciting days of workshops, training sessions, activities for all family members, including sighted siblings, and countless opportunities to meet blind adults and other families and children from around the country.
Programs, activities, publications, and resources of the NFB and NOPBC
- National and State Parent Seminars and Conferences
- Future Reflections magazine
- NOPBC website
- Books and videos
- Social Media
- NOPBC Facebook group
- NOPBC Facebook page
- NOPBC on Twitter
- Blindkid & other listservs
- Parent Leadership Program (PLP)
- NFB Early Childhood Initiatives
- Early Explorers
- Braille Reading Pals
- Early childhood conferences
- Letters from Santa (seasonal)
- Youth
- National NFB Scholarship program
- National Center for Blind Youth in Science website
- Junior Science Academy
- Youth Slam High School Science Academy
- Youth Track at national convention
- Transition workshops
- Slate Pals pen pal program
- American Action Fund
- Free Braille Books program
- Braille Readers Are Leaders contest
- ShareBraille book exchange
- Writing contests
- NFB-NEWSLINE® newspaper service
- National Federation of the Blind (NFB)
- NFB BELL® Academy (Braille Enrichment for Literacy and Learning)
- NFB-LINK mentoring program
- Free White Cane program
- Free Slate and Stylus program
- NFB Scholarship program
- Straight Talk about Blindness video series
- Where the Blind Work website
Contact Us:
National Organization of Parents of Blind Children
[email protected]
www.nopbc.org