Helpful Hints for Parents

Helpful Hints for Parents

Helpful Hints for Parents of Blind

Infants and Toddlers

by Christine Faltz
Reprinted from the Summer, 1997, issue of

Stepping Stone, the newsletter of the Long Island Chapter of the Parents of Blind Children

Division of the NFB.

Editor's Note: Blind herself, Christine is

the mother of a beautiful little girl, Samantha, who is also legally blind. Christine is a

former NFB scholarship winner, and an attorney who has chosen to stay home to be a

full-time mom. Like so many full-time moms, Christine has taken on other volunteer jobs.

She is the president of the NFB Long Island parent's chapter and editor of the chapter's

very fine newsletter, SteppingStone. Here is an example of some of the excellent advice

and information Christine shares with her chapter's members:

When a blind or visually impaired child is only a

few months old, most parents are still trying to cope with the fears and uncertainties of

having a disabled child. Conflicting information and advice is especially overwhelming at

this time. This is often compounded by the unfortunate attitudes of many in the medical

profession and, worse yet, by those who work with the blind. We have come a long way but,

even today, an alarming number of professionals working with blind children and adults

have low expectations for their clients and such negative attitudes that they act

surprised when confronted with successful, self-sufficient visually impaired men and

women.

Despite these attitudes we must remember that our

attitudes are the ones which will affect our children the most. Even in the face of deeply

entrenched stereotypes and professional misinformation and biases, we must hold fast to

the idea that if we pay our dues now, our children will reap priceless benefits in

self-esteem, self- advocacy, and the knowledge that we believe in their individual

potential.

Positive attitudes and matter-of-fact adaptation

of the world for our blind and visually impaired children starts at birth. As far as basic

needs—holding, feeding, dressing (assuming no medical complications)--there is

nothing extra or special that must be done for the blind infant. There are, however, very

simple techniques that can be employed to give your baby as much information as possible

about his or her environment.

When a baby is only a few months old, her ability

to hear you does not necessarily mean your location is known, and she has no way of

knowing that you are, perhaps, about to pick him up or fix her blanket. Before you pick up

the child or move something nearby, state what you are going to do, or at the very least

say the child's name before touching her. There is no need to handle a blind child more

carefully than you would a sighted child; she is not more fragile and is not predisposed

to being extra anxious or fussy. Keep in mind that for the first few weeks of life,

sighted babies are only able to see people and objects very close to their faces anyway.

When you take your child from room to room,

outside to the car, or into the store, to the extent that you are able to do so under the

circumstances (time, who's with you, etc.), you should state simply where you are going

and what you are doing. Hearing everyday speech is good for all babies' language

development, but the blind child will be able to use your verbal cues to begin

distinguishing, with her other senses, a change in location. For example, my 20-month-old

daughter was able, at about one year, to go to the kitchen or the bathroom when told to do

so. I spent a lot of time telling her: "We're going to go into the kitchen so Mommy

can clean up. We're going out of your room," (putting her hands on the door)

"and we're going straight. Mommy and Daddy's bedroom, where we sleep in the bed at

night, is on the right. The bathroom, where you have your bath, is on the left. After the

bedroom are the steps going downstairs to outside. Now here's the living room, with the

television and the stereo. We turn left, and here's the kitchen."

I tried to use the same descriptions as often as

possible. When I had the time, I showed her the furniture in the room, spoke its name and

its purpose. Even when very young, Samantha was very attentive when I spoke, and though

she obviously didn't understand most of what I was saying in the beginning, repetition

eventually led to absorption and understanding.

An older infant and toddler will often attempt to

do what Mommy and Daddy are doing: fold laundry, clean the table, wash the dishes. When it

is safe to do so, I show Samantha what I am doing and explain: "Mommy is giving the

dirty dishes a bath. They have food on them. Then we'll dry them with a towel, just like

you after your bath."

Don't take anything for granted. If your child is

curious, show whatever it is safe to show him. Then, when your attention is desired at an

inopportune moment, "One minute, sweetheart; Mommy's cleaning the table" will

actually have a concrete meaning; it will not merely be a jumble of words that he has

heard but doesn't understand because he cannot see what it is you are doing. Eventually,

he will put together your location, the sound of the water on the rag, the sound of the

rag on the table, and will know on his own what you are doing. But until you give meaning

to the sounds and smells and textures in his world, your blind baby cannot learn the

function of the objects in his environment. Do not feel foolish describing every little

thing and activity to your baby. It can only help her.

I personally don't like playpens, especially for

totally blind infants. Put your child on the floor with some toys; place a noisy toy out

of his reach to entice him to move to find it. This way he can learn that his environment

is far more than what he is readily aware of. When he begins to creep or crawl, show him

the boundaries between rooms, the extent of rooms, how he can move around tables and

chairs, but not around walls. Expose your child to everything: show him the steps, the

trees in your yard, the grass. Take him to the beach and show him the sand, how the water

moves, sea shells. Show him the inside and outside of the car his car seat is in. Show,

show, and show some more—hands on whenever possible—with constant explanations

using simple statements. Teach care providers to do the same. Place toys on accessible

shelves and show him where they are in relation to other objects in the room. As he begins

to show understanding of words and begins to use words to express needs and desires, you

will see that these efforts have paid off. By the time he is walking, your child will know

"right" and "left" and will have no trouble moving about familiar

surroundings with ease.